A little boy pointed at Emme and said “Why is she in that chair?” I answered, “It helps her move. Just like your legs help you walk, her chair helps her walk too.” The answer satisfied his curiosity, but his mother quickly apologized to us in front of both children. I understand why she did this, […]
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Before I knew it, Bethany was in my home for the first visit. We discussed my concerns and set up a plan of care. When we were done making the plan, I felt like she had restored my hope. I was, and still am, excited to help my son. I also don’t feel like I’m stuck trying to […]
Often, atypical kids are more anxious about everyday things that many kids do not even stress about. Prepping him on where he can find the bathroom, when and where he will eat, and how to open his locker will help him feel more comfortable with such a tremendous change in school settings.
I don’t remember much from the delivery — but I remember hearing him cry for the first time. I remember my husband telling me how incredibly beautiful he was — the most beautiful thing he’d ever seen. I remember seeing him in the incubator as they wheeled him out of the room to the NICU. I […]
I’m still relatively new to this world of special-needs parenting, so my lessons are raw. My eyes are opened every day to ways the world treats those with differences. So I proceed in humility to share what I’ve learned, and I hope that it enlightens some of you, too.
First, you have the heart-wrenching pain of watching your child struggle. You feel helpless as you watch doctors and nurses do the thing that you’re supposed to be able to do: make your child feel better. Add to that stress and lack of sleep, and you’ve got a pretty terrible combination.
Looking around, I saw other moms of newborns with Down syndrome who were where I was three years earlier. Doing more than it all; feeling lonely, isolated. Attending local events and still feeling alone. Where were the moms of color? Surely we weren’t the only ones in the area? So I started the African American Parents […]