I don’t remember much from the delivery — but I remember hearing him cry for the first time. I remember my husband telling me how incredibly beautiful he was — the most beautiful thing he’d ever seen. I remember seeing him in the incubator as they wheeled him out of the room to the NICU. I […]
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I’m still relatively new to this world of special-needs parenting, so my lessons are raw. My eyes are opened every day to ways the world treats those with differences. So I proceed in humility to share what I’ve learned, and I hope that it enlightens some of you, too.
First, you have the heart-wrenching pain of watching your child struggle. You feel helpless as you watch doctors and nurses do the thing that you’re supposed to be able to do: make your child feel better. Add to that stress and lack of sleep, and you’ve got a pretty terrible combination.
Looking around, I saw other moms of newborns with Down syndrome who were where I was three years earlier. Doing more than it all; feeling lonely, isolated. Attending local events and still feeling alone. Where were the moms of color? Surely we weren’t the only ones in the area? So I started the African American Parents […]
I’ll begin by telling you that today my son is completely mainstreamed into a general education classroom, and is so high functioning that you almost can’t tell he even has autism. I know that our results aren’t normal, but my greatest wish is that they give you hope if you know or suspect your child […]
I wish I could explain that the old me changed when I realized I might not be able to fix him. When I could no longer deny the possibility that my baby might not be able to live a regular adult life on his own. There is a piece of a mother that dies when […]
Sensitive children become overwhelmed easily and feel emotions in a big way. They are easily overstimulated, and may throw tantrums. They may have sensory issues such as being bothered by loud noises or feeling uncomfortable in certain types of clothing, or may have food aversions.