I’m still relatively new to this world of special-needs parenting, so my lessons are raw. My eyes are opened every day to ways the world treats those with differences. So I proceed in humility to share what I’ve learned, and I hope that it enlightens some of you, too.
Author Archive | Jenny
When you’re on the outside, you can’t see the hard work others are putting into it, or the ways it is helping them bless others. So if you have a friend selling something, here’s my advice to you: Stop rolling your eyes and start supporting your friends.
I thought it was time to share some of the things you should NOT say to the mom of a special-needs child. Please know my heart in this — not to shame you, but to help you re-think your words when trying to show you care.
I started ripping the room apart, layer by layer. I couldn’t find anything. After checking the corners, the mattress, the box springs, and the bedding, I thought we might be in the clear. But then I saw it: one flat brown bug, the same size as the nailhead trim on our headboard, staring back at […]
If you are one of these moms (like me), striving and planning and seeking perfection with every holiday ideal, it’s time to take a deep breath. There are things we can do to help manage our expectations and still keep the magic alive.
Everyone says it takes a village to raise a child. My village is filled with people I never asked for. Doctors. Therapists. Nurses. Durable Medical Equipment reps. Nursing supervisors. Schedulers. Pharmacists. Dieticians. Respiratory therapists. Orthotists. Surgeons. Mobility equipment reps. Insurance case managers.
Looking back, I could kick myself for not noticing her decline sooner. It happened rapidly (within 3-4 weeks) and right before our eyes. I was quick to rationalize my concerns about her lack of movement. She was constantly swaddled and snuggly sweet. Surely she was just a lazy baby? She smiled and cooed and won […]