I started ripping the room apart, layer by layer. I couldn’t find anything. After checking the corners, the mattress, the box springs, and the bedding, I thought we might be in the clear. But then I saw it: one flat brown bug, the same size as the nailhead trim on our headboard, staring back at […]
Author Archive | Jenny
If you are one of these moms (like me), striving and planning and seeking perfection with every holiday ideal, it’s time to take a deep breath. There are things we can do to help manage our expectations and still keep the magic alive.
Everyone says it takes a village to raise a child. My village is filled with people I never asked for. Doctors. Therapists. Nurses. Durable Medical Equipment reps. Nursing supervisors. Schedulers. Pharmacists. Dieticians. Respiratory therapists. Orthotists. Surgeons. Mobility equipment reps. Insurance case managers.
Looking back, I could kick myself for not noticing her decline sooner. It happened rapidly (within 3-4 weeks) and right before our eyes. I was quick to rationalize my concerns about her lack of movement. She was constantly swaddled and snuggly sweet. Surely she was just a lazy baby? She smiled and cooed and won […]
I’ve found the key to saving your sanity and your marriage during this process is to talk about it regularly at a previously agreed upon time. Yes, I’m talking about a meeting. I know it sounds painful, but I promise it’s not that bad. If you do the budgeting process as a team, you will be […]
I may never sleep again. As moms, we’ve all had this thought run through our head at one point or another. Maybe your baby is less than six months old. Sick or teething. Maybe you recently potty trained them or they’re going through a sleep regression. No matter the cause, it’s exhausting and mood-altering. Lack […]
It’s been two years now since my daughter’s diagnosis and surgery, and I can honestly say that SMA has changed our lives for the better. It’s hard and isolating at times, but it’s also led us to seek joy and contentment in the places that really count. In comparison to her life, the g-tube is […]