I will sit in the meeting and spend the entire half hour fighting the urge to stand on the table and shout, “Please don’t rush me! This is IMPORTANT! He doesn’t look sick, and he can fly under your radar, and I need you to UNDERSTAND that we can lose him!!!”
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Looking back, I could kick myself for not noticing her decline sooner. It happened rapidly (within 3-4 weeks) and right before our eyes. I was quick to rationalize my concerns about her lack of movement. She was constantly swaddled and snuggly sweet. Surely she was just a lazy baby? She smiled and cooed and won […]
Through trial, and lots of error, I have found a couple of options to help manage our out of pocket (OOP) medical expenses — a Health Savings Account (HSA) and a Flexible Spending Account (FSA).
I’ll laugh and joke about how relieved I am to be sending the kids off to school for eight hours everyday, but the truth is I’m nervous. Not first-day-jitter, nervous. No this is more of a my-child-has-dyslexia-so-please-be-kind nervous.
Hill School is a college preparatory, full-service school for students with dyslexia, dysgraphia, dyscalculia, ADHD, high-functioning ASD, and other learning differences. Hill School is launching its first-ever kindergarten class, starting in August for the 2017 – 2018 school year.
It hit me. Not only did I really need a nap, because I was trying to get a cat to talk, but it also made me step back and really think about the time I spend with Avery. I spend so much of it working on the things she’s doing in therapy that I tend […]
It’s been two years now since my daughter’s diagnosis and surgery, and I can honestly say that SMA has changed our lives for the better. It’s hard and isolating at times, but it’s also led us to seek joy and contentment in the places that really count. In comparison to her life, the g-tube is […]